Just got back to work, straight off the train from Manchester I should add, and what do I find? Someone in my office "borrowing" my keyboard. So I wasn't well pleased. Of course, this has raised an issue of security, but as my contract there expires on the 14th April I'm getting to a point were I don't give a shit.
However, the reason for my late arrival at work was the visit to my mum's (travelling via Manchester to see the boyfriend). I actually arranged this trip quite well in that I travelled straight from work on Friday, spend the best part of Saturday in Leeds, had quality time with Paul on Sunday and started back a zero-dark-o'clock today.
Mum is fine, if fact she looks better than she has in a long time. I suspect that some of that is because she took early retirement from her job as a special education needs co-ordinator at a deprived inner city school and has therefore relieved her of a huge amounts of stress. The only side effect she is getting is soreness in her joints, though she also says that she is getting tired easily. I have to confess that seeing her has lifted a weight from my mind. She is her usual cheerful self, and she doesn't look anything like you would expect of a cancer patient on chemotherapy.
Plus she is determined not to be beaten.
Monday, January 20, 2003
Thursday, January 16, 2003
I knew this was going to happen. The last time I spoke to my mother, she promised faithfully that I would be kept informed of what was happening. Well the date for her first chemotherapy has been and gone and not a word. I know that the effects of the treatment are such that she probably doesn't feel up to calling. But what excuse does my aunt have? On past experience my mother has been at death's door in intensive care and my aunt didn't tell me anything, and what was most annoying is that I was working in a different department of the same hospital. I am so angry yet I can't really be angry at my mother because she probably feels like shit at the moment, and I feel shit because I don't know what is happening.
Monday, January 13, 2003
Well I have arranged travel to go to Leeds to see my mother next weekend and I suppose I will have to wait to see what happens in the interim. I spoke with her on Saturday to let her know that I am going down. She gave me a real ticking off for getting upset again. She actually said that it wasn't as if the cancer was going to kill her, which made me laugh. I suppose that if she can be so upbeat about the situation I should really try to emulate her, but it is so hard when all I really feel is crushing depression combined with total helplessness.
It doesn't help that her first chemotherapy session has been put back two days which then makes me think that there is not as much chance as I was a first led to believe of reducing the tumour. On top of that I have lost a sapphire from the nice dress ring that she gave me when my boyfriend and I started living together and with the timing being what it is that has upset me as well. I know it's silly but my mind was trying to read all sorts of omens into that.
Ho-hum.
It doesn't help that her first chemotherapy session has been put back two days which then makes me think that there is not as much chance as I was a first led to believe of reducing the tumour. On top of that I have lost a sapphire from the nice dress ring that she gave me when my boyfriend and I started living together and with the timing being what it is that has upset me as well. I know it's silly but my mind was trying to read all sorts of omens into that.
Ho-hum.
Sunday, January 12, 2003
This week has been a nightmare. I almost feel as though a deity somewhere has it in for me. To bring things up to date:
Tuesday evening: My mother called to tell me that she has her test results back and that she had and inoperable cancer. I told a few people on my IRC channel, finding time to type between bursting into tears and I have a friend in the Midlands that I also told. I managed to get a lot of help and immediate moral support from them and they all gave me the encouragement that I needed to be able to tell my boyfriend (who currently lives in Manchester). It was really bizarre the way it was so much easier to tell the irc people than it was to tell my own partner. Once I had calmed down a bit I was able to call my boyfriend and his immediate reaction was to try to arrange to come up and visit me. I, on the other hand, thought that it would be better if he went to visit my mum. My mood was swinging from desperate sadness, to frustration and anger, all accompanied by floods of tears, so needless to say, I didn't get much sleep.
Wednesday: After having had a dreadful night of very disturbed sleep I got up and tried to get ready for work. However, with continued bouts of crying and being in a complete daze I realised at about 10:30 am that I was late (one and a half hours late at that point) so I rang my boss's secretary and explained what had happened, only just managing to stop myself from bursting into tears whilst speaking with her. I thought I would go to the restaurant on the corner of the street for lunch, so finished getting ready and as I was about to leave thought I'd head into work because I might at least manage to get something done between the tears and the dazed periods. I also thought that if I got back into work it would start to get my mind back on day to day things. It did eventually, but work wise the day was a complete wash out. My boss was away at a conference but he did manage to make time to give me a call, though I don't really think he knew what to say. As I put the phone down I burst into really hysterical tears that must have been heard right across the lab, because our Lab Manager came to see if I was okay, so yet again I had to recount what is happening. Of course this is now spreading right through the department which I'm not sure is a good or a bad thing. On the one hand, it saves me having to tell people why I am so gloomy, but there is also the feeing that it should be me telling people and that this shouldn't be the subject of general gossip. I have a friend who is an oncologist and I had a chat with her. She told me a lot about lung cancer, possible treatments, possible outcomes and that was very helpful. I also rang the Macmillan nurse who will be looking after my mum. She was very helpful, but at the same time she was very firm that she couldn't tell me anything without my mother's permission. She did, however, say that she wouldn't tell my mother anything about our conversation unless I agreed, so that was good. I slept better that night, though it was still a bit disturbed.
Thursday: Surprisingly, I was fairly okay. I got into work without a hitch and managed to get a fair chunk of work done. I was running behind because of Wednesday, but the really big job that I had, I managed to get completed, which left me feeling frustrated because it took the best part of the day but didn't make an impact on the in-tray. Had a really long conversation with my mother and told her that I had spoken with her nurse. I think she was a bit miffed at first but I explained why I'd called and that I didn't want to be in a position where she was too ill or tired from the chemotherapy to call me and that my aunt would be too busy "dealing with things" to bother calling to let me know and that I didn't want to be cut out of the loop. Anyway, mum said that she will tell everyone that they are to let me know what is going on.
Friday: Today was good. I've read a lot about the cancer treatments available, with probable outcomes, and that combined with my mothers really positive attitude is starting to have an effect. I actually feel guilty about being so upset because clearly that isn't what my mum wants. To be honest if I were in the same position I wouldn't want people to be miserable around me, but it is only natural to be upset in the first instance because whether you are expecting the news or not it's a big shock. Added to the fact that both my grandfathers died of cancer so I know what to expect if the tumour metastasises and/or doesn't respond to the chemotherapy, and I know it isn't nice. It isn't something that I ever wanted to see happening again and I particularly didn't want to see it happening to someone close. Still, as my mother say's you have to look at life in a positive fashion or you'd never do anything. So now I am going to go home and have a hot bath and carry on living my life. It's not that I don't care it's just that my mother is going to live her life as she wants to and now isn't the time to drop everything to go and be with her. What she want's most of all is for everything to carry on as normal, and that involves me living in Edinburgh and being a tour guide when she comes to visit. There will be a time when I have to put my life on hold - it just isn't now.
Tuesday evening: My mother called to tell me that she has her test results back and that she had and inoperable cancer. I told a few people on my IRC channel, finding time to type between bursting into tears and I have a friend in the Midlands that I also told. I managed to get a lot of help and immediate moral support from them and they all gave me the encouragement that I needed to be able to tell my boyfriend (who currently lives in Manchester). It was really bizarre the way it was so much easier to tell the irc people than it was to tell my own partner. Once I had calmed down a bit I was able to call my boyfriend and his immediate reaction was to try to arrange to come up and visit me. I, on the other hand, thought that it would be better if he went to visit my mum. My mood was swinging from desperate sadness, to frustration and anger, all accompanied by floods of tears, so needless to say, I didn't get much sleep.
Wednesday: After having had a dreadful night of very disturbed sleep I got up and tried to get ready for work. However, with continued bouts of crying and being in a complete daze I realised at about 10:30 am that I was late (one and a half hours late at that point) so I rang my boss's secretary and explained what had happened, only just managing to stop myself from bursting into tears whilst speaking with her. I thought I would go to the restaurant on the corner of the street for lunch, so finished getting ready and as I was about to leave thought I'd head into work because I might at least manage to get something done between the tears and the dazed periods. I also thought that if I got back into work it would start to get my mind back on day to day things. It did eventually, but work wise the day was a complete wash out. My boss was away at a conference but he did manage to make time to give me a call, though I don't really think he knew what to say. As I put the phone down I burst into really hysterical tears that must have been heard right across the lab, because our Lab Manager came to see if I was okay, so yet again I had to recount what is happening. Of course this is now spreading right through the department which I'm not sure is a good or a bad thing. On the one hand, it saves me having to tell people why I am so gloomy, but there is also the feeing that it should be me telling people and that this shouldn't be the subject of general gossip. I have a friend who is an oncologist and I had a chat with her. She told me a lot about lung cancer, possible treatments, possible outcomes and that was very helpful. I also rang the Macmillan nurse who will be looking after my mum. She was very helpful, but at the same time she was very firm that she couldn't tell me anything without my mother's permission. She did, however, say that she wouldn't tell my mother anything about our conversation unless I agreed, so that was good. I slept better that night, though it was still a bit disturbed.
Thursday: Surprisingly, I was fairly okay. I got into work without a hitch and managed to get a fair chunk of work done. I was running behind because of Wednesday, but the really big job that I had, I managed to get completed, which left me feeling frustrated because it took the best part of the day but didn't make an impact on the in-tray. Had a really long conversation with my mother and told her that I had spoken with her nurse. I think she was a bit miffed at first but I explained why I'd called and that I didn't want to be in a position where she was too ill or tired from the chemotherapy to call me and that my aunt would be too busy "dealing with things" to bother calling to let me know and that I didn't want to be cut out of the loop. Anyway, mum said that she will tell everyone that they are to let me know what is going on.
Friday: Today was good. I've read a lot about the cancer treatments available, with probable outcomes, and that combined with my mothers really positive attitude is starting to have an effect. I actually feel guilty about being so upset because clearly that isn't what my mum wants. To be honest if I were in the same position I wouldn't want people to be miserable around me, but it is only natural to be upset in the first instance because whether you are expecting the news or not it's a big shock. Added to the fact that both my grandfathers died of cancer so I know what to expect if the tumour metastasises and/or doesn't respond to the chemotherapy, and I know it isn't nice. It isn't something that I ever wanted to see happening again and I particularly didn't want to see it happening to someone close. Still, as my mother say's you have to look at life in a positive fashion or you'd never do anything. So now I am going to go home and have a hot bath and carry on living my life. It's not that I don't care it's just that my mother is going to live her life as she wants to and now isn't the time to drop everything to go and be with her. What she want's most of all is for everything to carry on as normal, and that involves me living in Edinburgh and being a tour guide when she comes to visit. There will be a time when I have to put my life on hold - it just isn't now.
Wednesday, January 08, 2003
I have become the Angel of Death
My mother was in hospital just before Christmas with pneumonia that wasn't responding well to antibotics. Whilst she was in hospital she had to undergo a battery of tests, getting the results back when she went to the clinic yesterday. However, the results are not good. She has an inoperable lung cancer and the doctors are hoping to start chemotherapy next week.
Meanwhile, I am about 200 miles away feeling very alone and wondering what to do. I feel angry that this is happening to my mother, and I am also angry at myself for not being there. At the same time my mother is telling me off for getting upset and when I suggested that I move back down south she told me not to be so stupid.
But what am I supposed to do?
Meanwhile, I am about 200 miles away feeling very alone and wondering what to do. I feel angry that this is happening to my mother, and I am also angry at myself for not being there. At the same time my mother is telling me off for getting upset and when I suggested that I move back down south she told me not to be so stupid.
But what am I supposed to do?
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